For Organizations

For CCHS organizations and rare disease communities

Breathe Together helps organizations support families, understand community needs, and turn repeated questions into safer, clearer resources.

Admin Console

Support beyond Facebook groups

Offer families a structured, private and reviewed alternative to informal messages.

Understand what families need most

See aggregated, anonymized trends about concerns, genotypes, ages and geography.

Identify recurring questions & gaps

Find the topics families ask about most, and where knowledge is missing.

Review anonymized insights

Approve anonymized community insights before they join the shared knowledge base.

Build trusted answer packs

Turn common questions into reviewed, reliable guidance for families.

Support research & surveys

Prepare better educational resources and support future research and survey design.

Breathe Together does not replace associations, doctors or family networks - it strengthens them by organizing knowledge safely.