Join the Pilot
Join the CCHS Pilot
We are building Breathe Together with families, not just for families. If your family is living with CCHS, join the pilot and help shape a safer, clearer and more supportive digital companion for the community.
Join the PilotCreate a family profile
Set up your private CCHS profile and keep key information in one place.
Ask real-life questions
Test the Compass assistant with the questions that matter to your family.
Upload selected documents
Add the documents you want the platform to use for private guidance.
Create an emergency profile
Generate a printable emergency medical profile for real situations.
Share feedback
Tell us what is helpful or unclear, and report answers that feel unsafe or incomplete.
Help future families
Help us identify missing resources and improve support for families to come.
Educational support only - not medical advice. Always consult your medical team.