For Families
Your child's journey, organized in one place
Breathe Together helps families living with CCHS organize what matters most - from diagnosis and ventilation to school, travel and emergency preparation.
Start Your Family ProfileBuild a CCHS family profile
Keep diagnosis stage, genotype, ventilation needs, care concerns, language and location in one place.
Upload important documents
Add PDFs such as genetic reports, discharge summaries, sleep studies or care plans.
Ask practical questions
Ask the Compass about care, school, travel, ventilation, emergencies and communication.
Get source-aware answers
Answers are marked by source: research, official guidance, community, your documents or general AI.
Generate an emergency profile
A printable emergency profile with critical information for hospitals, EMS, schools and travel.
Prepare for appointments
Generate questions for your physician, summarize concerns and organize topics before a visit.