A calm, step-by-step journey
Breathe Together helps families build a structured CCHS profile, organize documents and receive personalized, source-aware guidance. It helps you prepare, organize, understand and ask better questions - it does not make medical decisions.
Start Your Family Profile1 · Tell us where you are
A short guided questionnaire about your CCHS situation, stage, country, language, ventilation and concerns.
2 · Build your family profile
Keep diagnosis, PHOX2B genotype, ventilation needs, contacts, physicians and care topics in one private place.
3 · Upload medical documents
Add discharge letters, genetic results, sleep studies or ventilation prescriptions - they stay private.
4 · Receive a personalized brief
A clear summary of your situation, key topics, questions to consider and areas to raise with your team.
5 · Ask the Compass
Ask practical questions and get calm, balanced answers that clearly mark where the information comes from.
6 · Prepare for real life
Generate checklists, doctor questions, school notes, travel planning and a printable emergency profile.